Study: Psychosocial aspects of admission to palliative care: patient and carer experiences

Article:  A Broom, P. Good and E. Kirby. The Troubles of Telling: Managing Communication about the End of Life. Qual Health Res. 2014 Feb;24(2):151-62.

Abstract

Aim:  Communication about palliative care represents one of the most difficult interpersonal aspects of medicine.   Delivering the “terminal” diagnosis has traditionally been the focus of research, yet transitions to specialist palliative care are equally critical clinical moments. Our aim was to develop an understanding of the logics that underpin their communication strategies when negotiating this transition.

Method:  Here we focus on 20 medical specialists’ strategies for engaging patients around referral to specialist palliative care. We draw on qualitative interviews to explore their accounts of deciding whether and when to engage in referral discussions; the role of uncertainty and the need for hope in shaping communication; and their perceptions of how patient biographies might shape their approaches to, and communication about, the end of life.

Conclusion:  On the basis of our analysis, we argue that communication is embedded in social relations of hope, justice, and uncertainty, as well as being shaped by patient biographies.